What is patient and public involvement?
Patient and public involvement is about members of the public working in active partnerships with researchers and research organisations to guide, develop, conduct and communicate research activities. It is often abbreviated to PPI.
What does it involve?
Involvement can include:
- Identifying research priorities
- Advising on outcome measures important to the patient and public
- Contribute to and review of grant applications
- Assist in preparation and review of study materials e.g. participant information sheets
- Membership of trial steering committee
- Help with sharing research findings to the wider public
- Ensure findings are implemented into clinical practice
Who can get involved?
No medical experience of specialist knowledge is required to get involved. Anyone who has an interest in health and social care research, has some time to spare and is willing to share their thoughts and ideas with researchers can be involved. This includes (but is not limited to) patients, potential patients, carers and people who use health and social care services, as well as people from organisations, such as community groups, that represent people who use services.
How to get involved
We are always looking for more people to help us with our research. If you are interested in getting involved or would like more information about our work please contact us using the message box at the bottom of the page.
PPI in the READY study
Young people, parents/carers and the public have been actively involved in the READY study from an early stage, providing feedback on the research concept and reviewing the grant application. We aim to continue this partnership throughout all stages of the research, specifically to:
- ensure maximum relevance of the trial intervention to adolescents with depression;
- enhance response rates for recruitment and follow-up;
- guide the informed consent process and emotional support of participants;
- advise on patient information sheets and consent forms, questionnaires, interview guides, recruitment approaches and ethical issues;
- help interpret results;
- disseminate findings widely;
- demonstrate impact.
Through this involvement we aim to improve the scientific quality of the research by enhancing the relevance and appropriateness of the study outputs and to overcome practical and methodological challenges encountered during the project. Finally, we aim to add to the limited evidence on the impact of PPI in a large RCT.